香港地中海型貧血病協會

成立年份 Year of Establishment : 1982

會員人數 Membership : 190

香港地中海型貧血病協會
The Thalassaemia Association of Hong Kong

背景

Background

香港地中海型貧血病協會前身是香港地中海型貧血病家長互助會,由一群地中海型貧血病患者及家長組成,於1992年經社團條例註冊成立。

The Thalassaemia Association of Hong Kong, previously named The Cooley’s Anemia Association of Hong Kong, was established by the thalassaemia patients and their parents and was registered under the Societies Ordinance in 1992.

宗旨及目標

Aims and Objectives

- 加強醫護人士與家長溝通

- 促進地中海貧血病患者健康地成長

- 鼓勵家長間互助及了解

- 提升本地地中海型貧血病的醫療及護理水平

- 提供福利予地中海型貧血病患者

- to strengthen communication between medical staff and patients

- to enhance the healthy growth of thalassaemia patients

- to encourage mutual help and understanding among parents

- to raise the standard of care and treatment in Hong Kong

- to provide welfare for thalassaemia patients

服務對象

Service Target

地中海貧血病患者及其家屬

Thalassaemia patients and their families

服務

Service

醫院探訪、定期聚會、教育性講座、康樂活動、代會員訂購醫療用品、公眾教育

Hospital visit, regular meetings: educational talk, recreational activities, purchase thalaset for patients, public education

電話 Tel

:

2889 8399

傳真 Fax

:

2818 0636

電郵 Email

:

thal@biznetvigator.com

網址 Website

:

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地址 Address

:

香港薄扶林道102號瑪麗醫院護士宿舍B1201-203
Room 201-203, Nurses’ Quarters Block B1, Queen Mary Hospital
102 Pokfulam Road, Hong Kong