成立年份 Year of Establishment : 1995
會員人數 Membership : 642
香港視網膜病變協會
Retina Hong Kong
| 背景 | Background | ||
| 香港視網膜病變協會成立於1995年，原名「香港視網膜色素病變人士協會」，是依據香港《公司條例》第32章和《稅務條例》第88條註冊成立的非牟利病人互助慈善團體。作為全球華人社會的首個視網膜病患者組織，協會致力推動各地華裔患者對抗疾病，擔當華人社群和西方國同類組織的中介角色。 | Retina Hong Kong, formerly know as “Hong Kong Retinitis Pigmentosa Society”, is first and at the moment the only organization of the kind among Chinese communities around the world. It is registered as a non-profit making organization under Chapter 32 of Companies Ordinance and is granted with tax exemption under Section 88 of Inland Revenue Ordinance. As the first concerned organization in Chinese community, the self help group aims to bridge between people with inherited retinal degenerative diseases in | ||
| 宗旨及目標 | Aims and Objectives | ||
| - 幫助病人及家人認識疾病本質，發掘潛能，增強自立和自信 - 教育公眾接納和鼓勵病人融入社會 - 促進傷殘人士組織的溝通和合作 - 提供科學研究和治療的訊息，推動視覺復康 - 支持和協助科學研究視網膜病變的成因、治療和預防 | - to encourage patients understand the disease, develop their potential for independence and self-confidence - to educate the public accept the patients for social integration - to encourage communication and co-operation among organization of people with disabilities - to gather and disseminate all varieties of information concerning inherited retinal degenerative diseases - to exert and encourage medical and scientific research on cause identification, prognosis, treatment and prevention to inherited retinal degenerative diseases | ||
| 服務對象 | Service Target | ||
| 視網膜退化病變患者及其家屬 | Inherited retinal degenerative disease patients and their families | ||
| 服務 | Service | ||
| 復康訓練、助視器材外借服務、互助小組、文康聯誼活動、情緒支援及輔導、資訊服務、社區傳訊及教育、關注病人權益、香港視網膜病變退化患者登記冊計劃 | Rehabilitation training, visual aid equipment lending services, emotional support and counseling services, mutual aid groups, social and recreational activities, provision of information, community communication and education, concern on patients’ rights, Hong Kong Patients’ Registry of Retinal Degenerations | ||
| | | | |
| 電話 Tel | : | 2708 9363 | |
| 傳真 Fax | : | 2708 8915 | |
| 電郵 Email | : | info@retina.org.hk | |
| 網址 Website | : | www.retina.org.hk | |
| 地址 Address | : | 九龍長沙灣麗閣邨麗萱樓地下101室
| |