成立年份 Year of Establishment : 1988
會員人數 Membership : 310
樂晞會
Hong Kong Lupus Association
背景 | Background | ||
樂晞會是由一羣患有紅斑狼瘡的病患者合力組織起來的自助互助團體。 | Hong Kong Lupus Association is a coadjutant and self-helping organization founded by a group of Systemic Lupus Erythematosus (SLE) sufferers. | ||
宗旨及目標 | Aims and Objectives | ||
以過來人身份去關懷及支援同路人,使更多人認識此病,喚醒公眾人士關注,及如發現患上此病時應如何處理及面對。目標為: - 發揮病友間「自助、助人」之共濟精神、提高病友間的士氣,共同為疾病奮鬥 - 協助遭受疾病打擊的個人、家庭坦然地面對疾病,促進病患者與家屬間之溝通和適應 | The group aims at sharing experience, caring and providing assistance to SLE sufferers and helping them to face and treat SLE as well as raising the public’s awareness and understanding about SLE. The objectives are : - to enhance the self-help spirit and morale among sufferers so as fight against the disease - to help sufferers and their family members to face the disease and facilitate their communications and adaptation | ||
服務對象 | Service Target | ||
系統性紅斑狼瘡症病患者 | Systemic Lupus Erythematosus patients | ||
服務 | Service | ||
出版《樂晞園地》刊物及病友通訊錄、聚會﹙醫學講座、交流及會員大會﹚、聯誼聚會、熱線服務﹙提供病友及外間查詢本會活動、並提供朋輩情緒支援服務﹚ | Publishing of “ | ||
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電話 Tel | : | 8103 7018 | |
傳真 Fax | : | 2336 6546 | |
電郵 Email | : | ||
網址 Website | : | www.hklupus.org.hk | |
地址 Address | : | 九龍橫頭磡邨宏禮樓地下﹙社區復康網絡﹚
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